Current funding needs
Outreach and support service (estimated cost €100,000 p.a.)
People suspected of having conditions such as Huntington’s disease and early-onset dementia currently face lengthy waiting times for assessments. We want to create an outreach and support service in order to reduce these waiting times and limit the distress they cause, reduce the costly transport of patients, and improve on the national procedure for diagnoses.
A key component of this service will be the recruitment of a mobile Clinical Nursing Specialist (CNS) who will visit individuals in their own districts to assess their mental health and make recommendations for their treatment and care. This CNS position will be the first of its kind in Ireland.
Peer support programme (estimated cost €50,000 p.a.)
In response to positive feedback from people attending our pilot HD Café events and the ongoing Alzheimer Cafés organised in partnership with The Alzheimer Society of Ireland, we wish to introduce a monthly peer support programme. This would involved an activity like music therapy, pottery, art, etc., alongside an educational programme to enable patients, families, and carers to meet, talk, share experiences, and offer support.
Creation and maintenance of a national register for early-onset dementia and Huntington’s disease (estimated cost €50,000 p.a.)
The creation of a national register for those with early-onset dementia and Huntington’s disease, housed at Bloomfield and maintained by our expert team, would allow us to accurately quantify and classify the extent of these conditions in Ireland.
The resulting epidemiological data would allow for better planning nationally in relation to said conditions and, thus, better provision for current and future care requirements. At present, this kind of classification does not take place in Ireland, and its absence limits our ability to contribute internationally to research for treatment and cures as well as our access to international funding opportunities.
Huntington’s disease wellness initiative (estimated cost €50,000 p.a.)
This initiative would establish counselling and education services for individuals who receive a positive diagnosis of Huntington’s disease. It would help those diagnosed to manage stress and depression either associated with the diagnosis as well as the condition, ensure that the affected are proactively seeking and engaging with services, and advise on the day-to-day challenges they may face, including those that may occur in the workplace, or to do with accommodation needs.
Bloomfield renovation and activities programme (estimated cost €80,000 p.a.)
Tackling current refurbishment and equipment needs in both Bloomfield Hospital and New Lodge Nursing Home would have an immediate and positive impact on residents and service users alike. These needs include:
- Redesigned bathing areas including hoists
- Improved signage and colour-coding of corridors to support residents with dementia or cognitive difficulties
- Additional equipment for residents and service users with Huntington’s disease including specialised seating and beds, and weighted blankets
We would also like to fund additional staff, equipment, and transportation to expand our activities programme to further improve our residents’ quality of life.